Follow by Email

Monday, 29 October 2012

Monday 29th October!

Half Term!

This half term we are visiting my cousin and looking at my family history! Oh yes very interesting;D hahaha! Hope you all are having a great half term! (to anyone who is on it)
Being with my cousin and mum seeing the hitory, the only way we are able to do this is the scrap book of photos my grandma and many other relatives made.....a scrapbook it is! I want my fmily to know me and my amazing times I have had! This is my little project for this half term and when I'm in hospital.
I'm also going to a halloween party at my bestfriends house! We are going as cats! So any ideas for making costumes and make- up.....greatly apprecitated!


Well I can't wait for november....not! Its going to be hetic...seriously! I have to go and have my hearing checked (due to genttmycn and nother nebulized medicene I used to have) then i'm getting my teeth buit up.. I have pointy teeth! FUN! Then I go into hopsital have a week of IV's and whilst there have a blood test for annual clinic. Then i'm going in to have my port put in! Then after that a couple of weeks after or so, I have to go see the ears, nose and throat doctor as they have now discovered CF can effect them too!:L What a month... roll on December! Though I should be tip top for next year!:)


I'm thinking of also writting a book about coping and my experiences with CF also my life and the great times I have had with my friends (to make it not all doom and gloom!) :D So I will keep you in tune of how it is doing, maybe post a few of my ideas here. Yes i' only a teen but I want to achieve something!:D

Spread the word

If you know anyone with CF please share this with them!:D It would mean a lot!
Also I will be posting what is happening (not just CF related) stay tuned!<3

Get in touch!

If you have any worries about what your going through or just want to discuss CF with me, i' happy to chat and answer any questions you have!:)

Tweet me - @cicelymathews


Friday, 26 October 2012

Friday 26th October 2012

Okay... I was going to wait til Saturday but I just couldn't! :D


All my decisions were always made for me for most of my life so far. Now getting to the teen years of my life a lot of my choices are finally coming from me. Yes to start off with this was a little daunting and still can be. Feeling you have control over your health does get you thinking more about your condition and more how its going to effect my life as the years go by. I like having some control but not all yet. I like have the choice of what kind of IV line I want and little things like that. 
Doctors are directing the questions more to me now as soon I will be in adults and will have to fend for myself... scary!


I am having a vascaport in a couple of weeks time.
If you don't know what it is. Basically its a permanent line inside your body under the skin.
Its feeds straight to your heart. This requires a little operation which last about an hour after this you can use your port as much as you like and they can last up to 10 years!!

I am having this because honestly my veins are rubbish. They can never get lines in anymore. 14 days and i had to have 7 IV lines in! Not fun!!
I also take part in a lot of sport and having to stop that for 14 days is a nightmare, so being able to do sport whilst on IV's will really benefit me!! 
It will also help me because I wont have the faff of them trying to put a line in meaning I can have more of a school life as these are the most important years... and GCSE''s are not easy and the notes so far I have had to catch up on I hardly understand!!:P 
So November is a hectic month for me! But once i'm the other side of it, i'm sure it will all turn out just fine!

Spread the word

If you know anyone with CF please share this with them!:D It would mean a lot!
Also I will be posting what is happening (not just CF related) stay tuned!<3 

Sunday, 21 October 2012

Lets get the word around..

If you know anyone with CF please share this with them!:D It would mean a lot!
Also I will be posting what is happening (not just CF related) stay tuned!<3



Hello Again.... Day 2 ;D

Morning Campers ;D

Hey everyone! Thankyou for viewing my blog..
Hopefully this will get better at time... i'm sure of it!
I'm going to create a facebook page so anyone with CF can ask questions there as I know it is the most common social network used
I also have twitter which I will give the link to shortly... please ask questions about CF and if your having a rough time at the moment with yours you can always talk to me!:)


Saturday, 20 October 2012

Posting Regime

I'm gunna post every week I think
But I will post tomorrow so I can get this up and running!
Bye for now
So.. what is CF? I hear you ask

Cystic Fibrosis (CF) is a genetic disease you get when your Mum and Dad have a CF gene and then they have you (yeah.. awkward bit :L) and you have both of their CF genes.
It effects different people in different ways.
It can effect your chest, being more prone to catching infections
It can also effect your digestive system as we are missing an enzyme that absorbs fat, so it's difficult to put on weight.. yay you probably all think, but you don't know how much I long I wish to be chubby... really.
& Yeah we can east as much rubbish as we want!

But it's not all fun and games (well it never is really) we have to have IV (intravenous antibiotics) that go into your veins and give direct access to your body and fights disease better!

Many people with CF have a port, I don't but am getting one on the 21st November. I'm a little nervous, who wouldn't be? I have never had an operation even though this is a minor operation I have never had an operation before.

WOW a lot of operations in that sentence XD

So yeah, i'll keep you posted!



So hey everyone! I will have no views yet, I need to make this thing public :D hahaha!
Well this blog is for anyone with CF who wants to see my life with it and how CF can vary from person to person.
This is for people with CF so they don't feel alone in the world. I know I did. I would really recommend this forum if you do feel alone. :) It has really helped me, with any questions I have had :)